Patient Support Groups
Note: The Division of Dermatology and University of Tennessee make no recommendation or endorsement of organizations listed. This list is provided solely as a public service and is not meant to be all-inclusive. Individuals must determine for themselves how to use the information provided. When making medical decisions, a physician should always be consulted.
Albinism
The National Organization for Albinism and Hypopigmentation
PO Box 959, East Hampstead, NH 03826-0959
Phone: 800 473-2310 (US and Canada)
Phone: 603 887-2310
Fax: 800-648-2310
http://www.albinism.org
If you have any questions or comments, please e-mail us at webmaster@albinism.org
Alopecia Areata
National Alopecia Areata Foundation (NAAF)
14 Mitchell Boulevard
San Rafael, CA 94903
Phone: 415.472.3780
Fax: 415.472.5343
http://www.naaf.org/
E-mail: info@naaf.org
Cutaneous T-cell Lymphoma
Cutaneous Lymphoma Foundation
PO Box 374
Birmingham, MI 48012-0374
Telephone: 248-644-9014
Fax: 248-644-9014
Or contact us via email
http://www.clfoundation.org/
Eczema
National Eczema Association
4460 Redwood Hwy., Ste. 16-D
San Rafael, CA 94903-1953
415.499.3474 / 800.818.7546
Fax: 415.472.5345
www.nationaleczema.org
info@nationaleczema.org
Ichthyosis
Foundation for Ichthyosis and Related Skin Types
1364 Welsh Road G2
North Wales, PA 19454
Phone 215.619.0670
Fax 215.619.0780
http://www.scalyskin.org/
info@scalyskin.org
Lupus Erythematosus
Lupus Foundation of America, Inc.
National Office
2000 L Street, N.W., Suite 710
Washington, DC 20036
Phone: 202-349-1155 (8:30 a.m. - 5 p.m. EST, Monday - Friday)
Fax: 202-349-1156
1-800-558-0121 (Information request line)
1-800-558-0231 (Para información en Español)
http://www.lupus.org
Mastocytosis
The Mastocytosis Society
http://www.tmsforacure.org/
Melanoma
American Melanoma Foundation
12395 El Camino Real, Suite 117
San Diego, CA 92130
(858) 882-7712
http://www.melanomafoundation.org/
The Melanoma Research Foundation
170 Township Line Road,Bldg B
Hillsborough, NJ 08844
Phone: 1-800-MRF-1290
Fax: 908-281-0937
http://www.melanoma.org/
Mycosis Fungoides
Cutaneous Lymphoma Foundation
PO Box 374
Birmingham, MI 48012-0374
Telephone: 248-644-9014
Fax: 248-644-9014
Or contact us via email
http://www.clfoundation.org/
Pemphigus and Pemphigoid
International Pemphigus & Pemphigoid Foundation
1540 River Park Drive, Suite 208
Sacramento CA 95815
United States of America
(916) 922-1298
fax (916) 922-1458
http://www.pemphigus.org/
Porphyria
The American Porphyria Foundation
4900 Woodway, Suite 780
Houston, TX 77056-1837
Telephone: 713 266 9617
Toll free number: 1-866-APF-3635
Fax: 713-840-9552
http://www.porphyriafoundation.com/
Psoriasis
National Psoriasis Foundation
6600 SW 92nd Ave., Suite 300
Portland, OR 97223-7195
Phone: 503.244.7404 OR 800.723.9166
Fax: 503.245.0626
E-mail: getinfo@psoriasis.org
http://www.psoriasis.org/
Rare Disorders
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100
Tollfree: (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax:(203)798-2291
http://www.rarediseases.org/
email: orphan@rarediseases.org
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