Sickle Cell Websites»
Sickle Cell Disease Association of
America (SCDAA) is a patient advocacy site with information for the public.
» Center for Disease Control and Prevention's Hemoglobin
S Allele and Sickle Cell Disease, is an excellent article about sickle cell
genetics and epidemiology. » The
Comprehensive Sickle Cell Centers, a description of a major clinical research
program supported by the NHLBI. » Harvard
Sickle Cell Program is a comprehensive source for information for patients
and health care providers. » The
Sickle Cell Information Center offers a broad range of information for the
public and professionals. » National
Organization for Rare Disorders, Inc., an information portal for all rare
diseases. » ClinicalTrials.gov
provides regularly updated information about federally and privately supported
clinical research in human volunteers and a search engine for clinical trials
in different diseases. » The
National Newborn Screening and Genetics Resource Center (NNSGRC) offers nformation
and resources for health professionals, public health community, consumers, and
government officials. » Genetic
Alliance is a support organization for different genetic problems.
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